I
sustained a head injury at birth which led to the memory difficulties
I have and deal with daily. There have been instances when I have
looked a fool, been disorganised and caused problems for myself,
usually in work. But there has also been times when people have not
believed me about this, as if I'm pretending to not be able to
remember. When I've managed to remember one thing, this, for some
people, seems to negate the countless other thing I can remember.
Sometimes the fact that after hundreds of attempts at using a
computer system, or at learning a martial arts manoeuvre, or at learning to
drive, I've finally managed to pick up a skill and ingrain that
knowledge- that ability, for some people, completely negates the
condition that I have. I couldn't possibly have the problems I say I
have if I can do these few things to a high level... right?
Well,
wrong. The condition exists, and the proof is in a written
psychological assessment. I can't bring that with me everywhere,
though, and it goes into perhaps a little too much detail for most
people. What I need people to know is that I have short term memory
difficulties and I might mess up once in a while. No biggie (for
them, at least). Until recently, the only physical proof I would have
on me on an average day was the scar on the back of my head, a load
of notes in my phone and a concessionary bus pass. This sounds like a
lot, but given the amount of problems I've had with NHS prescription
fines, dental fines, Working Tax Credit, Disability Living Allowance,
Personal Independence Payment, Universal Credit, The Department for
Work and Pensions in general, learning to cook and controlling my
weight, huge slumps into depression and therapy treatment for this,
I've learned that this proof still isn't enough for some people and
you don't get the support that you NEED, to do what you need to do.
I've
always strived to find answers to the questions and solutions to the
problems that I'm faced with. I recently heard about Headway's Brain Injury Identity Card scheme.
It offers a credit-card-sized documentation explaining, to anyone who
might need to know, what kind of issues I might be facing. I filled
an application for this a few weeks ago, including a PDF of my 2009
psychological assessment. Today I received an email saying the card
is on its way to me!
Whether
this card will convince doctors to forward me to services when they
occasionally (and inexplicably) wouldn't, or whether it will prevent
me racking up hundreds of pounds worth of NHS fines for ticking the
wrong box, remains to be seen. But there's no way it will harm me to
have this Headway card. I'd be really interested in contacting other
people through social media who have this card, and particularly
those who have found it useful in whatever situation. Tweet me!
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